Tanya and Dax
Tanya and Dax have three lovely children. The eldest, Joshua, was born in 2011 and was diagnosed with Down Syndrome shortly after birth.
Joshua is a cheeky, happy, lovely boy and is loved and adored by all of his family and friends. He is gaining independence and attends Parkwood Hall School in Swanley.
Tanya says, "We have been attending the BDSSG since Joshua was around 2 months old and I sought out a support network. Having a group of people to share experiences and tips with is invaluable and there is a great sense of community and support. I am always happy to speak to any new parents."
The Burger Family
Married to Craig, we have 2 amazing daughters Lauren 19 and Zoe 17.
I was 37 when Zoe was born she came into the world by emergency C-Section in September 2004. The next day in the afternoon we were met by the paediatrician to tell us Zoes diagnosis of Down Syndrome (Trisomy 21).
We have been part of the Bromley support group for 16 years and know how important a support network is to families. We meet regularly to share experiences and give advice and support to one another. We have met and made wonderful friends along the way.
Privacy Policy
How privacy is respected when personal information collected by our organisation is dealt with
This Privacy Policy applies to information we, Bromley Down Syndrome Support Group (Charity Number 1193050) and our trustees and any officially appointed representatives (“Bromley DSSG”), collect about individuals who interact with Bromley DSSG. It explains what personal information Bromley DSSG collects and how Bromley DSSG uses it.
If you have any comments or questions about this notice, feel free to contact Bromley DSSG at bromleydssg@gmail.com
1. Personal data that Bromley DSSG processes
The following table explains the types of data Bromley DSSG collects and the legal basis, under current data protection legislation, on which this data is processed.
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Please note that, owing to the nature of the work carried out by Bromley DSSG, information referred to in the above table will also include information relating to minors, dependents etc. in connection with accessing the services provided by Bromley DSSG and any permissions and consents will be deemed to apply to them should those individuals be under the age of 18 at the time when permission is given.
2. How Bromley DSSG uses your data
Bromley DSSG will only use your data in a manner that is appropriate considering the basis on which that data was collected, as set out in the table at the top of this policy.
For example, Bromley DSSG may use your personal information to:
·reply to enquiries you send to Bromley DSSG;
·handle donations or other transactions that you initiate;
·where you have specifically agreed to this, send you marketing communications by email relating to the work of Bromley DSSG which Bromley DSSG think may be of interest to you.
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3. When Bromley DSSG shares your data
Bromley DSSG will only pass your data to third parties in the following circumstances:
·you have provided your explicit consent for Bromley DSSG to pass data to a named third party or Bromley DSSG are doing so solely to fulfil your legitimate interests in accessing the services provided by Bromley DSSG;
·Bromley DSSG are using a third party purely for the purposes of processing data on behalf of Bromley DSSG and Bromley DSSG have in place a data processing agreement with that third party that fulfils Bromley DSSG’s legal obligations in relation to the use of third party data processors; or
·Bromley DSSG are required by law to share your data.
In addition, Bromley DSSG will only pass data to third parties outside of the EU where appropriate safeguards are in place as defined by Article 46 of the General Data Protection Regulation.
4. How long Bromley DSSG keeps your data
Bromley DSSG takes the principles of data minimisation and removal seriously and have internal policies in place to ensure that Bromley DSSG only ever asks for the minimum amount of data for the associated purpose and deletes that data once it is no longer required.
Where data is collected on the basis of consent, Bromley DSSG will seek renewal of consent at least every three years after the initial consent was given.
5. Rights you have over your data
You have a range of rights over your data, which include the following:
·where data processing is based on consent, you may revoke this consent at any time and Bromley DSSG will make it as easy as possible for you to do this (for example by putting ‘unsubscribe’ links at the bottom of all marketing emails sent by Bromley DSSG);
·you have the right to ask for rectification and/or deletion of your information;
·you have the right of access to your information;
·you have the right to lodge a complaint with the Information Commissioner if you feel your rights have been infringed.
A full summary of your legal rights over your data can be found on the Information Commissioner’s website here: https://ico.org.uk/.
If you would like to access the rights listed above, or any other legal rights you have over your data under current legislation, please get in touch with BDSSG at bromleydssg@gmail.com
Please note that relying on some of these rights, such as the right to deleting your data, will make it impossible for Bromley DSSG to continue to deliver some services to you, however, where possible Bromley DSSG will always try to allow the maximum access to your rights while continuing to deliver as many services to you as possible.
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6. Cookies & usage tracking
A cookie is a small file of letters and numbers that is downloaded on to your computer when you visit a website. Cookies are used by many websites and can do a number of things, eg remembering your preferences, recording what you have put in your shopping basket, and counting the number of people looking at a website.
Where cookies are used to collect personal data, Bromley DSSG have referred to these purposes in section 1 above, along with other personal data that Bromley DSSG collects. However, Bromley DSSG also uses some cookies that do not collect personal information but that do help Bromley DSSG collects anonymous information about how people use the Bromley DSSG website.
Bromley DSSG uses Google Analytics for this purpose. Google Analytics generates statistical and other information about website usage by means of cookies, which are stored on users’ computers. The information collected by Google Analytics about usage of the Bromley DSSG website is not personally identifiable. The data is collected anonymously, stored by Google and used by Bromley DSSG to create reports about website usage. Google’s privacy policy is available at http://www.google.com/privacypolicy.html.
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7. Modifications
Bromley DSSG may modify this Privacy Policy from time to time and will publish the most current version on the Bromley DSSG website. If a modification meaningfully reduces your rights, Bromley DSSG will notify people whose personal data are hold by Bromley DSSG and are affected.