Tanya and Dax
Tanya and Dax have three lovely children. The eldest, Joshua, was born in 2011 and was diagnosed with Down Syndrome shortly after birth.
Joshua is a cheeky, happy, lovely boy and is loved and adored by all of his family and friends. He is gaining independence and attends Parkwood Hall School in Swanley.
Tanya says, "We have been attending the BDSSG since Joshua was around 2 months old and I sought out a support network. Having a group of people to share experiences and tips with is invaluable and there is a great sense of community and support. I am always happy to speak to any new parents."
The Burger Family
Married to Craig, we have 2 amazing daughters Lauren 19 and Zoe 17.
I was 37 when Zoe was born she came into the world by emergency C-Section in September 2004. The next day in the afternoon we were met by the paediatrician to tell us Zoes diagnosis of Down Syndrome (Trisomy 21).
We have been part of the Bromley support group for 16 years and know how important a support network is to families. We meet regularly to share experiences and give advice and support to one another. We have met and made wonderful friends along the way.
Data Protection Policy
Bromley Down Syndrome Support Group (Charity Number 1193050) (“Bromley DSSG”)
Definitions
Charity - means Bromley Down Syndrome Support Group (Charity Number 1193050) a registered charity.
GDPR - means the General Data Protection Regulation.
Responsible Person - means the Chair, for the time being, of the Charity.
Register of Systems - means a register of all systems or contexts in which personal data is processed by the Charity.
Data protection principles
The Charity is committed to processing data in accordance with its responsibilities under the GDPR.
Article 5 of the GDPR requires that personal data shall be:
• processed lawfully, fairly and in a transparent manner in relation to individuals;
• collected for specified, explicit and legitimate purposes and not further processed in a manner that is incompatible with those purposes; further processing for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes shall not be considered to be incompatible with the initial purposes;
• adequate, relevant and limited to what is necessary in relation to the purposes for which they are processed;
• accurate and, where necessary, kept up to date; every reasonable step must be taken to ensure that personal data that are inaccurate, having regard to the purposes for which they are processed, are erased or rectified without delay;
• kept in a form which permits identification of data subjects for no longer than is necessary for the purposes for which the personal data are processed; personal data may be stored for longer periods insofar as the personal data will be processed solely for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes subject to implementation of the appropriate technical and organisational measures required by the GDPR in order to safeguard the rights and freedoms of individuals; and
• processed in a manner that ensures appropriate security of the personal data, including protection against unauthorised or unlawful processing and against accidental loss, destruction or damage, using appropriate technical or organisational measures.
General provisions
This policy applies to all personal data processed by the Charity.
The Responsible Person shall take responsibility for the Charity’s ongoing compliance with this policy.
This policy shall be reviewed at least annually.
The Charity shall register with the Information Commissioner’s Office as an organisation that processes personal data.
Lawful, fair and transparent processing
To ensure its processing of data is lawful, fair and transparent, the Charity shall maintain a Register of Systems.
The Register of Systems shall be reviewed at least annually.
Individuals have the right to access their personal data and any such requests made to the charity shall be dealt with in a timely manner.
Lawful purposes
All data processed by the charity must be done on one of the following lawful bases: consent, contract, legal obligation, vital interests, public task or legitimate interests (see ICO guidance for more information).
The Charity shall note the appropriate lawful basis in the Register of Systems.
Where consent is relied upon as a lawful basis for processing data, evidence of opt-in consent shall be kept with the personal data.
Where communications are sent to individuals based on their consent, the option for the individual to revoke their consent should be clearly available and systems should be in place to ensure such revocation is reflected accurately in the Charity’s systems.
Data minimisation
The Charity shall ensure that personal data are adequate, relevant and limited to what is necessary in relation to the purposes for which they are processed.
Accuracy
The Charity shall take reasonable steps to ensure personal data is accurate.
Where necessary for the lawful basis on which data is processed, steps shall be put in place to ensure that personal data is kept up to date.
Archiving/removal
To ensure that personal data is kept for no longer than necessary, the Charity shall put in place an archiving policy for each area in which personal data is processed and review this process annually.
The archiving policy shall consider what data should/must be retained, for how long, and why.
Security
The Charity shall ensure that personal data is stored securely using modern software that is kept-up-to-date
Access to personal data shall be limited to personnel who need access and appropriate security should be in place to avoid unauthorised sharing of information.
When personal data is deleted this should be done safely such that the data is irrecoverable.
Appropriate back-up and disaster recovery solutions shall be in place.
Breach
In the event of a breach of security leading to the accidental or unlawful destruction, loss, alteration, unauthorised disclosure of, or access to, personal data, the Charity shall promptly assess the risk to people’s rights and freedoms and if appropriate report this breach to the ICO (more information on the ICO website).
